| The Australasian Psoriasis Registry
The overall aim of the Australian Psoriasis Registry (APR) is to develop and maintain a national web-based database that will provide valid and reliable longitudinal clinical data of psoriasis sufferers in Australia, with the ultimate aim of providing better care and improving outcomes for patients.
The goal is to establish a cohort of all patients in Australia with moderate-to-severe psoriasis being treated with biological disease modifying drugs, as well as a suitably large comparison cohort of patients with moderate-to-severe psoriasis not receiving biologic therapy.
By collecting long-term information about people's psoriasis management, their health status and quality of life, the APR aims to provide reliable and valid outcome data to Australian doctors, consumers, policy makers, drug development companies and approval agencies. The APR will focus on the long-term safety and efficacy of established and new generation 'biologic' drugs, and the impact of living with psoriasis.
In consultation with of number of College Fellows, several overseas centres and a local software designer we have developed:
- A web based online application that will allow clinicians or nurses to securely enter data from any location with internet access
- A centralized administration to provide user access, quality control of data and facilitates auditing and reporting.
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