2016 EB Health Professionals Symposium
Session 1 - Accidental Counsellor Workshop
2:15pm - 6:00pm
Presented by Lifeline Melbourne
It is highly likely that health professionals and support personnel involved in the care of individuals with EB and their families will encounter challenging or emotionally distressed individuals during their work. Accidental counsellors are not counsellors, but find themselves in a 'counselling role' by accident as a result of conversations or requests from clients, colleagues, friends or others.
Lifeline Melbourne will facilitate the workshop, which aims to provide people with a range of practical and effective skills to "step into the shoes" of an accidental counsellor and be able to appropriately respond to and support clients when they are angry, distressed, or experiencing a challenging time. The workshop will be interactive with many opportunities for group discussion, activities and practicing new skills.
Learning outcome will include:
- Identify signs of people needing emotional support;
- Improve communication and active listening skills;
- Practice counselling techniques relevant to your role;
- Techniques to appropriately respond to aggressive or distressed clients, and crisis situations;
- Understand mental illness and suicide intervention, with helpful support options and referrals; and
- Develop skills to maintain own professional boundaries and develop self-care strategies.
Participants will receive a participant workbook, access to e-learning documents and a certificate of completion. Email email@example.com prior to 10th November 2016 to register for Session 1 and receive your e-learning documents. This session must be completed prior to your attendance on the day.
Please note: a light evening dinner will be provided priot to the start of Session 2.
Sessions 2 - Management of Cutaneous Squamous Cell Carcinoma in EB
6:30pm - 8:30pm
Guest Speaker: Dr Jemma Mellerio
DEBRA International is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition Epidermolysis Bullosa (EB). It's vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and cures for EB.
DEBRA International has recently published best clinical practice guidelines for the management of squamous cell carcinoma (SCC) in EB patients. These guidelines were developed following a systematic literature review and international expert consensus, which included Australian experts Dedee Murrell and Susan Roberston. The lead author was Dr Jemma Mellerio from London, UK, who is visiting Australia during November 2016 and will be the keynote speaker for this session.
The aim of these guidelines is to best inform health care professionals and patients living with EB on diagnosis and management of SCC to improve patient outcomes and quality of life. EB patients and families have been encouraged to read these guidelines and discuss them with their dermatologist and other treating doctors.
A full copy of the guidelines can be accessed here.
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